I am a 40-year old woman, raised in Dublin, Ireland and now living in the Pacific Northwest, USA. In November 2011, I got sick overnight with what felt like a very bad virus. The symptoms morphed and changed over time, but it never went away and I have felt ill every day since then. I visited many doctors and had many tests. In May 2012, I finally had to leave my job, my career, my social life. Almost a year after I got sick, I was officially diagnosed with chronic fatigue syndrome (CFS) –known as myalgic encephalomyelitis (ME) in the rest of the world –and there is no doubt in my mind that this was triggered by the flu shot (in a body already battered by stress, lack of sleep and a history of autoimmune conditions and allergies), which I got one week before the onset of viral symptoms. In September 2012, I became housebound and, since then, I have very slowly slipped downhill. I am currently trying everything I know to gain some momentum and find a life with this disease.
I started this blog originally to chronicle treatment with low-dose naltrexone (a drug therapy not approved by the FDA, not used by very many doctors, and not backed by a lot of studies), but I stopped taking it after a month. My blog has since become my communication with my friends and family, my diary, my symptom tracker, and a therapeutic outlet.
I hope to help others with CFS/ME by providing info, support and the realisation that you are not alone!
Blog cover page image of phoenix by ClintonKun