August 19th, 2012
I don’t know if it was a good idea to start low dose naltrexone on the first day this year that I might describe myself as feeling good. But I did ~ I started it last night and this is going to be my daily diary of how it is working.
A little background: I am being treated – or, rather, I am treating myself – for presumed Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS). I say “presumed” because the tests, diagnosis and treatment for this condition are a joke. Doctors aren’t educated about ME – even the “experts” – and they are extremely hesitant to discuss this diagnosis or order tests that might be “unneeded” in order to confirm this diagnosis. Because there is no definitive test to confirm ME, there is always a tiny seed of doubt that it might not be the answer. For me, that seed is very small. The symptoms fit too perfectly.
More to follow…
Rag and Bone Shop of the Heart 
Me too! Reading a list of ME symptoms is like yup, yup, yup, that’s me. It all makes (perhaps too much) sense. That’s the test for ME.
LikeLike
So true! But, then, why can’t I stop searching for “The Answer”?!
LikeLike
[…] I started this blog one year ago today. I never thought it would become a permanent part of my routine and something that gives me such pleasure. I started it as a daily tracker of treatment with low-dose naltrexone. The original url was ldndiary.com. […]
LikeLike
This is exactly like chemical sensitivities, where in some countries it’s called MCS but in Australia, there is no medical definition or classification, so many doctors just look blank and have no idea. Luckily though, I’ve found an Immunologist who has a great understanding and has helped me make major changes to my living arrangements, and now, since I’ve got sicker, my diet. This has given me some respite and the ability to live a normal-er life than before. But, I must say, I’ve lost a lot of friends because they don’t want to wear to go without wearing fragrance or perfume around me, so that’s a downer. I think ME is similar in the aspect of not having that recognition. Do you have any problems with chemicals? And, do you fibro type symptoms?
LikeLike
Will be interesting to read you experiences with LDN 😉
LikeLike
Thanks for liking my posts!
LikeLike
I hate that tiny seed of doubt that doctors rely on because of their inside the small box of their training. Fact is the box, medically speaking, is getting smaller and smaller and doctors need to start looking outside the box.
LikeLike
Amen, sister! Thanks for commenting. 🙂
LikeLike