So, the MD that my husband and I have seen since 2007 has left her practice abruptly and I’m quite sad because we had a great relationship and mutual respect. She trusted me and would run tests that I requested if I had good reasons. She also knew me before I was sick and that was very important to me. She knew me when I was bouncing off the walls with energy and happy. She saw me a week before ME hit for a check up and I told her my only problem was sore muscles which I attributed to sitting at a desk after so many years walking the floors of restaurants. She witnessed the abrupt change in my abilities when all the other doctors I’ve seen have nothing to compare my current level of health to.
Now my two doctors are naturopaths: Dr. Erin and Dr. Kim. I had follow-ups with both of them in the last 10 days. Dr. Erin has put me on 25 mg of DHEA and progesterone. They’re topical, compounded only with coconut oil, nothing else. She’s hoping these will feed down both pathways to raise all the other hormones that are low.
And by “pathways”, I mean, instead of giving me just Pregnenolone (at the top of the “map”) and letting my body do with it what it wants, the DHEA and progesterone insure that (in theory) I’m feeding all branches of hormone production:
My thyroid hormones continue to be low, even though I almost doubled my dose a few months ago, so I’m changing to compounded T3 and T4. Dr. Erin doesn’t want me to try NDT (natural desiccated thyroid from pigs) because I’m so reactive right now, but she’s hoping compounded meds without the crappy gluten- and dairy-derived fillers will help me absorb the hormones better. I’m really nervous about the change because I’ve taken the same generic pills every morning for 6 years — well before I got sick.
My salivary cortisol test showed high levels throughout the whole day, especially at night. However, Dr. Erin said she thought functionally I was still low, her theory being that my body is compensating for something and that cortisol is either being converted to a less active form or receptors are down-regulated, which results in my body needing to produce more to get the same results. She also wants me to start humic acid (for chronic infections) and a homeopathic lotion to rub into my sternum which can supposedly desensitise my body and help reactivity. Not sure how much faith I have in homeopathy, but there’s no harm in it, other than the cost. I’ve also been told to start daily “hydrotherapy” (basically, hot and cold towels to boost immune function) and oiling my body to absorb additional fat (some serious old wives’ shit going on here).
Dr. Kim ran a bunch of blood tests. The good news is my CBC, metabolic panel, folate, iron and vitamin D are all within normal range (the latter two I would like to be higher). The bad news is, total immunoglobulin and all 4 subclasses are even lower than they were when Dr. Chia tested them. I also had high levels of Mycoplasma Pneumoniae IgG, HHV6 IgG (which I already knew) and she said I was “dripping in EBV.” Gross.
The final blow was candida is high. Those who know me, know I have dreaded the day I was tested for candida and purposely didn’t bring it up with the last 30 doctors because I don’t want to face my sugar addiction. Dr. Kim isn’t insisting I go on a strict no-sugar diet, god love her, because I think she recognises my need for the joy it provides and, really, I try to be responsible — a bit of dark chocolate, ice cream, some honey, jam, fruit, dates… It’s not like the good ol’ days where I could eat a Dairy Queen Blizzard or a whole purple Yorkie without thinking twice. She is putting me on a prescription anti-fungal, Nystatin, a pulsed dose — 4 days on, 3 days off.
I am waiting to hear from insurance about sub-cutaneous IgG (because I’m too scared to start with IVIG) and, in the meantime, I am starting to supplement copper, low dose B-complex, additional B6 and B1, increasing Thorne Trace Minerals to twice a day and magnesium glycinate to 4 times a day, as well as homemade electrolyte water all day long.
I’m hoping and praying that I will feel like a different person once my hormones and thyroid are balanced. Then my blood pressure will come up and my brain will work better, headaches will dissipate, my immune system will be able to suppress the infections, sleep will get better, reactions will fade, fatigue will lift and we’ll all live happily ever after!!
I will second that final line!!! Bring on the happy ever after… xx
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Wow! Lots going on. It’s good to have things to try, at least. My most recent IgE results are very interesting- I’ll leave you in suspense until my next medical update. Do take it slowly- I worry for you trying new supplements when you had such an awful experience with the Cromolyn. I hope that if you do have an adverse reaction, it’s very mild, and even better, I hope you find some benefit from them!
One thing I have noticed is that when my candida levels are high, taking something like nystatin does work, but only for as long as I take it. What works for me Is to do the course of anti-fungal, and to also increase my probiotics. I know that yogurt is high in histamine- so I can’t eat much of it. But, if I catch the candida early enough, one big spoonful right before bed (after the tooth brushing) for a few nights, and I’m good to go. For me, that is the only way to stay in balance. When I’m way out of whack, I pull out the big guns, and go and get some BioGaia or some Bio-K to really sock it to that yeast! This may be TMI for some, but when my daughter and I had thrush when she was nursing, I would take a cotton square soaked in Bio-K and tuck it against my skin. Worked better than nystatin, gentian violet, clotrimaderm cream, everything fancy.
Good luck- I do hope some of these approaches are successful!
Karen, I know, I’m my own worst enemy. As soon as I have an okay day, I add a food or supplement– usually both since I have such a back-log of things waiting in the wings to be tried. And then I have to wait days to stabilise and then I do it again.
I’m really freaked out about the candida and totally sabotaging myself by not changing my diet. I have a real addiction and I’m scared of what the Nystatin will do to me. I’m putting off starting until after Christmas. I’ve never heard of Bio-K, thanks for the tip. X
I’m hoping for you, too.
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Thank you, Carol! Right back at you and your family. x
[…] never drinking so much before bed that you’ll have to get up to go to the loo in the night, balancing hormones (really, this may all be because of consequence of topical progesterone and pregnenolone), and good […]