I Scream, You Scream

What has the power to make me expend energy writing a blog post? You guessed it: ice cream!

I’m having a very hard time quitting my sweet habit. I don’t eat a lot of desserts and I can live without processed sugar, but I seem to need that little bite of sweetness after meals to seal the deal. Small bites of ice cream and chocolate have always been my go-to desserts.

All store-bought, non-dairy ice creams have carageenan, guar gum, erythritol, and “natural flavors” or soy lecithin or a lot of sugar. Although I don’t eat these a lot, I’ve felt frustrated at my inability to eliminate this habit when I have so easily and strictly stopped eating all the other food groups my doctor has specified. Bring in this $34 (when I bought it) ice cream maker on Amazon Prime. It was too daunting for me to tackle, but my husband made it look easy and I’ve had fresh, creamy, healthier ice cream for the last few weeks.

Here’s the basic info: coconut milk + sweetener + flavour = YUM

The coconut milk should be the full-fat canned kind. This is the only brand I found with no guar gum in it. The sweetener can be dates (make amazing “caramel”) or bananas or honey or coconut sugar (resembles brown sugar and my doctor has okayed it!). The flavour can be anything you can dream up ~ nuts, fruit, extracts etc.

So far I have made Caramel Pecan, using this recipe from My Whole Food Life (it was far too sweet for me with 2 tbs of honey in addition to the dates, so be careful) and Pistachio-Almond, using Food Babe’s recipe, but, beware: I used 1/2 cup of pistachios and there were too many nuts and not enough creaminess. Also, don’t use salted pistachios ~ duh! I have the ingredients for the mint chocolate chip (even though the Enjoy Life chips are made from cane juice and I’m not allowed to have it on my current diet) and I have some huckleberries with which I want to experiment. The Spunky Coconut has a lot of recipes, too. She uses hemp and chia seeds which help take the place of the “gums”. There are some other creative flavour ideas here.

Before you get started, make sure you have all the ingredients needed, plus ice and salt for the ice cream making process (there is a product called “ice cream salt“, but I think you can use regular salt, too). Don’t believe the recipe if it says you need to freeze the ice cream maker bowl first or refrigerate the tin of coconut milk overnight- you don’t.

Ok, my half hour is up and I have to go to an ENT doctor appointment for my sinus issues, which are stopping me from wearing my cpap, and what might be an ear infection from trying to be “healthy” and use nasal irrigation. Another purchase wasted. Down with neti pots!

I was going to go back and spend more time making this a fancy two-scoop photo, but I couldn't be arsed. You get the gist. ;)

I was going to go back and spend more time making this a fancy two-scoop photo, but I couldn’t be arsed. You get the gist. 😉

I’m still here… But still going to stay away.

Hi family and friends,

I just wanted to thank you all for your kind messages and support. Sorry I haven’t been able to respond yet. I’m still in bad shape. Sleep has disappeared once again, pain has skyrocketed, daily headache, neck stiffness, back pain, tight chest. Im swollen, sore, cowering from noise and utterly exhausted. I haven’t been able to wear my cpap for weeks because my nose has been stuffy and that makes any sleep I do get unrefreshing. I’m panicking, of course. What’s causing it? What’s my next move? New drug? Start supplements again? I’m cycling through the sleep drugs again with no luck.

I’m thinking of you all and hope you understand my lack of communication. XOXO

An open letter by top ME/CFS doctors to HHS

I’m very, very sick with a reemergence of my original symptoms (drenching night sweats, chills, fever, headache, nausea), so I might be gone for a while.

Reposting from Quixotic: My M.E. Blog:

By now everyone in the ME/CFS community (in America anyway) is familiar with the controversy over the U.S. Department of Health and Human Services (HHS) hiring an outside contractor to develop a new definition of ME/CFS. If you’ve somehow missed everything that’s occurred on this front in the past month, here’s the 50 peso version:

HHS announced that they were going to hire an outside contractor to, among other things, redefine ME/CFS and create diagnostic criteria. The leading candidate was a company called the Institute of Medicine (IOM). IOM had previously been hired to conduct similar work related to Gulf War Syndrome and, by most accounts, completely botched the job, leading to much frustration by GWS sufferers. Knowing this, the ME/CFS community launched a grass roots email campaign to stop the IOM contract. Not long after, HHS announced that they cancelled their plans to hire IOM. The ME/CFS community breathed a sigh of relief. Several days later, HHS reversed course and hired IOM anyway.

Now a group of leading ME/CFS doctors and researchers have published an open letter to the director of HHS imploring her to reconsider the entire project and, particularly, to adopt the Canadian Consensus Criteria (CCC) definition of ME/CFS. The letter is direct, forceful and is cosigned by all the big names. It will be interesting to see if HHS has the guts to ignore this (but history tells us they will).

The letter is republished here on ProHealth.

ANYONE CAN SIGN THE PETITION HERE. THERE ARE ONLY A FEW THOUSAND SIGNATURES, PLEASE SIGN AND SHARE!

In The Garden This Week

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Spinach and Kale and Chard, oh my!

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Harvest Moon out my window

The Summer of Spiders

The Summer of Spiders

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New fence…

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…courtesy of my husband.

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My Momma!

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Bee rock to go with the ladybug rock ~ from my nieces. 🙂

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Beautiful Baby A. (Z. and J.’s little girl)

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Last of the Seattle Summer Sun

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AUTUMN!!

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imageMy very own SCOOTER! Stay tuned for a post on the exciting story of how this came into my possession. 🙂

If there’s anything you need…

Sarah, at Dead Men Don’t Snore, always writes pointed insights into living with this disease and chronic illness, in general. Reblog:

Dead Men Don't Snore's avatarDead Men Don't Snore

One of the most common responses when someone is sick or bereaved is “if there’s anything you need, just let me know”. Well-intentioned as these words may be, it is unlikely the person will let you know what it is that they need for three simple reasons.

1. It is difficult to distinguish genuine offers of help from simple politeness.

When I first became ill, friends, relatives, doctors, colleagues and virtual strangers would pat my arm and say ‘if there’s anything you need…’ but it was rarely possible to tell who really meant those words and who proffered them as meaningless platitudes when they didn’t know what else to say.

On several occasions I plucked up the courage to ask for help only to realise the friend in question had never really expected to be held to their offer. Once asked for help, they would feel obliged to deliver, but would often do…

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