I just want anyone reading this blog to read these two posts. They explain it as well or better than I ever could. So many of us going through the same thing with no hope in sight:
http://www.fightingfatigue.org/tag/post-exertional-malaise/
http://meaningfulsuffering.wordpress.com/2012/11/09/crashed-and-burned/
Both of these are so good and so exactly what you try to tell me. Whatever about brain fog, I’m beginning to think many ME/CFS sufferers are highly intelligent and skillful communicators. Isn’t it all amazing how this disease is now such a part of our lives. I know not ‘good’ amazing but the growth of knowledge and awareness of a previous unknown world amazes. 2012. One year on….if we are accepting I’d guess that we have come that far relatively soon and because of you, your research, your blog, your wonderful perseverance and courage. I know that 6 months ago, I’d be shocked at how I think about you and your situation now. I really wish I could spend a day or days living what you live. I think of those ‘if you had 3 wishes’. (Obviously, my first would be to take it away from you.) Many more people know people who have been afflicted by this curse than I would ever have expected. Many do say to me that some ‘get over it’ about which I am now skeptical though they also say it took years which gives me hope for you in the future. If this part of the journey is faster than it is for many, just maybe that part will come sooner, too.
On Sat, Nov 10, 2012 at 2:51 AM, My Journey with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome wrote:
> ** > akaemilo posted: “I just want anyone reading this blog to read these > two posts. They explain it as we’ll or better as I ever could. So many of > us going through the same thing with no hope in sight: > http://www.fightingfatigue.org/tag/post-exertional-malaise/ http://meanin” >
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