Simple Pleasures (+ amazing gluten-free, dairy-free, seedy cracker recipe)

A few great things happened this week.

First, today, the sun came out.

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Second, birds finally found my feeder:

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Third, after all these months, my husband has given me back the joy of texture:

I was dying for some sort of crunch, some bite ~ but not like raw celery… Something heavier, something that could stand in for bread or a substantial cracker~ that could hold a piece of salami or almond butter. I have had it up to here with soft foods, fruit, raw vegetables and nuts. My husband, bless his helpful soul, has perfected a recipe.

First he tried this one (beware: if you make it, use half the salt or less), but I didn’t want to rely so heavily on oats since my doctor doesn’t even want me eating any and is only making an exception for my breakfast granola/porridge since I whined so much.

Then he tried this one, minus the garlic powder so it could go savoury or sweet. However, they were quite… pungent. That was the only way I could think to describe them. … Too earthy. I was afraid they would overpower a simple topping like jam.

Third time’s a charm! He melded the two to make his own recipe. He promises they are quick and easy if you own a food processor (I have to go to a different floor, close the door to whatever room I’m in and hold my hands over my ears ~ that’s how ridiculously loud ours is). I have them with almond butter and banana and a bit of honey in the morning or avocado and chicken and some olive tapenade for lunch… They’d even be delicious with Nutella, but I’m staying away.

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1 cup gluten-free oats
1 cup pumpkin seeds, raw and unsalted
1 cup sunflower seeds, raw and unsalted
1/4 cup sesame seeds
1/2 cup raw almonds
2 tbs coconut flour
2 tbs flax seed meal
1 1/2 tsp salt (you might want a bit more, say 2 tsp)
1/2 tsp baking soda
8 oz water
5 tbs olive oil

Preheat oven to 350 degrees. Blend all dry ingredients in food processor until mixture resembles flour. Add water and oil to “flour” and make dough. Roll out to 1/8″ thick on parchment paper on two baking trays. Score the dough into squares or rectangles or whatever and bake for 30-35 minutes.

The final simple pleasure is: I found heaven in a fatty jar. I bought this coconut oil based on the Amazon reviews. I didn’t think my husband had even seen it yet. One night, he made some chard and fish. I said, “Why is this chard so good?” I was worried that he had sauteed it in butter because it was far more flavourful than the food I’ve been eating lately. “I used that coconut oil,” he says. “Why is the fish so good? Did you use a different seasoning?” “Coconut oil, again.” The next night we (he) cooked chicken breast in it… freakin’ delicious! Now I’m going to go slather it all over my skin, too, like the reviewers on Amazon recommend. Not really. Well, maybe.

Gratitude for the little things. 🙂

Happy Birthday to my Mother!

Today, my friend C.V. reposted this blog called, “Top 6 Orchestra Flashmobs — Acts of Robust Hit-and-Run Culture in Public Spaces“. I insist everyone watch ~ at the very least ~ the top video of Ode to Joy and the Canadians singing Handel’s Hallelujah. It turns out, one of the few things that can take me out of the pain and the grimaces and the fear is music… and I have a soft spot for flash mobs. I was moved to tears almost immediately, but smiled from ear to ear through every video. There is something reassuring about a group of people preforming together for free, in a public space ~ it shows a generosity, takes us out of the cerebral, reminds us to pay attention to beauty in all places.

On that note, happy birthday to my Momma, who performed in her own Hallelujah flash mob in Dublin in 2011. See it here.

flash mob

Don’t say all this rubbish and stop thinking.

Thank you for letting me rant, dear readers. You’ll be happy to know that I just lay down for my morning meditation and the annoyance and frustration at the doctors has dissipated. Their reasons for not wanting to do new blood tests are logical and I actually agree wholeheartedly that there are too many tests being done and that the discovery of harmless anomalies lead doctors and patients down a rabbit hole of more and more invasive tests and more money spent and time wasted… I get it and I agree. I am desperate for a discovery, though. Because I had a false positive malaria test, I keep wondering if one of the other tests I had was a false negative. I’m desperate for a eureka moment.

And, when it comes to all those physical tests that the doctors didn’t do, I will choose to see that as generous. I’m not sure what all the tests entail and what conclusions can be drawn from their results, but I do know I’m not worried about my balance (except insofar as I get dizzy every time I stand up, which I’m used to) and brain fog is about 10th on my list of symptomatic concerns. So, CF Doc, thank you for being generous enough to not subject me to tests. Thank you for noticing how slumped I was in that chair and understanding what that must mean and choosing not to subject me to any energy-draining diagnostic tests.

Oh, and thank you for caring about my mental well being. Meditation is doing more than your psychotherapist ever could, but I’ll still go to see her in case she has some special insights into coping with chronic pain.

There. My Zen moment. See what quiet introspection can do?

How long will you think about this painful life?
How long will you think about this harmful world?
The only thing it can take from you is your body.
Don’t say all this rubbish and stop thinking.
~Rumi

Just Like You Said It Would Be

Well, my summation of the visit to the Chronic Fatigue Clinic changed in tone a little when I received the paperwork and called to make a follow-up appointment. The next available opportunity to see the main clinic doctor is not until the end of April. After he asked me no questions and spent only about 20 minutes with us, I can’t ask my questions and get some advice on how to live for another 3 1/2 months? That’s almost a year from when I first picked up the phone to call them. What if I didn’t have an amazing GP and she hadn’t referred me to the Good Doctor? Would I just be floundering on my own all this time? I’m disgusted. The system is broken. There are no options for us. I guess I would have gone to specialty clinics and alternative medicine practitioners that don’t take insurance… So, I’d be in an even worse financial situation.

You can see below why I was annoyed (murderous) when I got the paperwork in the mail today. Only one of the boxes has a check mark because they didn’t do any blood tests and they didn’t touch me. They checked “‘tender points’ on your muscles” because I told them my muscles are sore. I haven’t had a blood test done in a year. They never said anything like, “There are these tests that we can do, but it’ll have to be the next appointment” or anything that might reassure me that they’re not either lazy or skeptical or both. Or the system just does not work.

CF clinic 001

And the referral to see their therapist says, “Patient with fatigue. Please evaluate for CBT. Also depression and anxiety.” My bubble is burst. It’s just like all the ME/CFS patients online said it would be. Graded exercise and CBT for depression and anxiety. I’m depressed my life is gone and I’m anxious that I might never have a good quality of life, but I’m not depressed and anxious clinically. So, why should I go back to see him? Is he at home in the evenings pouring over the medical literature and the studies like I am? Is he reading one after another personal story on blogs and in forums? I know more than they do and, more importantly, I know my body more than they do. I’m on my own in this.

CF clinic referral 001

PS: Our appointment was January 3rd, 2013. Idiot.

I can see too many mouths open
Too many eyes closed, ears closed
Not enough minds open

My Very Easy and Healthy Smoothie and Granola Recipes!

I find it amusing and perplexing that bloggers love recipes and anything written about food. I could have 99 posts about ME/CFS that never get read, but the 100th post about my oat bar recipe will have 10 bloggers “liking” it. So, with that in mind, listen up foodie bloggers! (foggers? bloodies?) I -somebody with too little energy to shower most days- make a smoothie every day and granola every week. They’re easy and they cost such an exorbitant amount of money at the shops, that you should start making your own immediately!

Triple Berry Smoothie 1

[Edit: I have since started doing green juices and not eating so much fruit, but this is still delicious for a yummy treat.]

E.M.’s Basic Smoothie (dairy-free, sugar-free, gluten-free etc.)

Blend:

  • 1 banana
  • a few handfuls of frozen mixed berries
  • almond milk (sweetened or unsweetened, vanilla or original)

Now, here are the variations that make it interesting:

  • 1 banana (or pear, if bananas are too much sugar or too many carbs. Often I’ll put half the banana in my granola for breakfast and then use the other half in a smoothie for “elevensies”)
  • a few handfuls of frozen mixed berries (or fresh berries or mango or…)
  • almond milk (or coconut milk or soy milk or hemp milk or cow’s milk or yogurt or ice cream or frozen yogurt or…)
  • splash of orange juice (really kicks it up a notch)
  • 1 tsp vanilla
  • pinch of cinnamon and/or nutmeg
  • agave nectar or stevia to taste (but you don’t need it!)
  • 1 tbs flax seed meal (I always do this)
  • a few walnuts (I always do this, too. You wouldn’t believe how good walnuts are blended up in a smoothie)

Also, you can add water or ice to thicken or thin the smoothie without adding calories, but not affecting the taste too much.

Granola after roasting

Granola consists of oats, a far and something sweet. So, it can be as simple as oats, oil/fat and honey… and then you get to add any seeds, nuts or different flavours you like. I made up all these measurements, you less or more to your liking.

E.M.’s Healthy Granola (dairy-free, refined sugar-free, gluten-free)

  • 4 cups gluten-free rolled oats 
  • 1/2 cup raw sunflower seeds (can be salted. If not, add 1/4-1/2 tsp salt to recipe)
  • 1/2 cup raw pumpkin seeds
  • 1 cup chopped nuts (any kind: I like pecans, cashews and almonds. If I didn’t put walnuts in my smoothies, I’d put them in my granola)
  • 1/2 cup coconut (can be sweetened or unsweetened)
  • 1/2-1 tbs cinnamon
  • 5 tbs fat of choice (butter, high-oliec sunflower or canola oil, heated up coconut oil… lately I’ve been using olive oil and the taste has not overwhelmed the finished product)
  • 5 tbs honey (or brown rice syrup or maple syrup or whatever liquid sweetener you like)
  • 2 tsps pure vanilla extract (I add much more because I love vanilla)
  • 1/4-1/2 cup dried fruit (raisins, cranberries, apples, cherries etc.)

Preheat oven to 300 degrees. Combine dry ingredients. Heat oil, honey and vanilla over low heat until it is runny but not boiling. Pour over dry ingredients, mix thoroughly and spread over 2 baking trays lined with foil or parchment. Bake for about 30 minutes until golden. When cooled, add dried fruit (otherwise they have a tendency to get a bit crispy and charred in the oven). I love mine in clumps, but I think you’d need more honey to get that effect. The NY Times recently said that if you leave a “donut hole” in the middle of the baking trays and don’t stir the granola while it’s baking, it’ll come out clumpier, however, it didn’t work for me.

Which brings me to the variations: obviously, you can have no seeds or no nuts or no coconut. You can have no vanilla or cinnamon or dried fruit. Tinker with the oil and honey. I only put 2 tbs honey and 2 tbs agave nectar in my last batch, knowing I could always add more to my bowl of granola when I’m eating it … but, I didn’t think it was quite sweet enough. This is not grocery store granola! This way you can make it healthier or not ~ whatever you like. You’re in charge. 🙂

Enjoy!