What happens when a healthy person has an air purifier in their bedroom that begins to rock ever-so-slightly in the night? What about when they have a bit of a leak from their cpap? What about when the temperature in the bedroom goes up to 75 degrees? What about when the dog stretches and his nails graze the wall? What about when a line of sunlight creeps under the black-out blinds? What about when someone dares to take a step two floors below their bedroom? Probably nothing. Probably, they keep sleeping soundly. If they wake, they probably go back to sleep fairly quickly. It probably doesn’t even register.

What happens when a person with M.E. experiences these things?

This:

Zeo graph from 1am-9am showing constant “wake” (top of graph).

What happens when a healthy person only gets 2 hours of broken sleep? They are very, very tired.

What happens when a person with M.E. experiences this?

Heart racing, difficulty breathing, muscle pain, extreme stiffness, dizziness, reemergence of migraine, very blurry vision, difficulty forming coherent sentences, loss of appetite, inability to get out of bed, panic. And that’s only in the beginning of the day.

Stop haunting me now
Can’t shake you, no how…
Good morning, heartache, sit down.