The Reaction Chronicles

I’ve been adding a supplement or trying a drug or testing a food every few days for a while, holding off before and during my period and if I am reactionary. I have recently had some of the most violent side effects to some of the most innocuous substances and I still find it incomprehensible. In my old life — that old Elizabeth who started 10 supplements at full dose on the same day — I never would have believed that such a small amount of something “harmless” could cause such an extreme reaction. Most notably, ElectroMix electrolytes paradoxically causing extreme blood pressure crashes, D-ribose causing extreme blood sugar crashes and Dr. Yasko’s All In One vitamin causing such terrible bone and muscle pain and cramping from the waste down that I didn’t sleep for three days and was considering going to the hospital and begging for an epidural.

I wanted to chronicle these trials so I remember. Here are my notes from the last four months. No note means no discernible reaction.

  • 4/26/14: Started CoQ10 100mg
  • 4/23/14: Started Thorn Bio-gest
  • 4/20/14: Started Now Foods Yucca
  • 4/15/14: Started Prednisone (bad sleep, swollen hands and feet, grumpy, facial hair, very bad tachycarrdia)
  • 4/13/14: Started Thorne Riboflavin 5 phosphate
  • 4/12/14: Started 2 Fish oil capsules
  • 4/10/14: Started Calm magnesium + calcium
  • 4/3/14: Changed Zyrtec brand
  • 4/1/14: Started Dr. Yasko’s All In One vitamin (unimaginable pain from waste down in bones and muscles; spine muscles jumping; worst reaction ever)
  • 3/26/14: Started D-ribose (terrible BS crashes)
  • 3/25/14: Started Desonide cream and tried Valium (horrific headache, stuffy nose, SOB)
  • 3/24/14: Started Dr. Yasko’s digestive enzymes
  • 3/22/14: Tried Baclofen (bit of a headache)
  • 3/21/14: Started Molybdenum and Vivite face wash
  • 3/19/14: Started Finacea, Cereve face wash and clindamycin lotion.
  • 3/11/14: Tried Electromix (terrible BP crashes)
  • 3/8/14: Tried L-glutamine (sickest day in months)
  • 3/6/14: Started Jarrow Formulas Acetyl-l-carnitine
  • 3/5/14: Started Zyrtec
  • 2/27/14: Tried egg (very bad next day)
  • 2/26/14: Tried fish
  • 2/24/14: Tried avocado
  • 2/21/14: Started Zantac (terrible stomach pain and nausea)
  • 2/15/14: Tried gelatin again (helped sleep)
  • 2/14/14: Tried Valium (headache, stuffy nose)
  • 2/12/14: Tried Cannabis pill again
  • 2/5/14: Tried Thorn Medibulk
  • 2/4/14: Tried Benadryl for sleep and gelatin (hungover next day)
  • 2/2/14: Tried Tizanidine
  • 2/1/14: Tried egg, avocado and cannabis oil (very bad next day)
  • 1/26/14: Tried egg (itchy throat spot, very bad next day)
  • 1/20/14: Tried citrus
  • 1/5/14: Tried soy (bad headache)
  • 1/31/13: Tried Ativan (dopey, headache, bad the next day)
  • 12/24/13: Tried Trazodone again
  • 12/19/13: Tried Trazodone again
  • 12/16/13: Tried Trazodone
  • 12/12/13: Started PS
  • 12/6/13: Tried corn (next day bad bowel and headache)
  • 12/3/13: Started probiotics

Other reactions of notable mention:

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libIDo

You know when you look at the side effects of some drug and it says, “loss of libido”? Well, I’ve never paid any attention to that. I am too busy looking for what I really care about: the prevalence of headaches, angioedema and anaphylaxis in clinical trials. It’s like my antihistamine nasal spray: when I researched reviews, an incredible number of people complained and warned of the terrible taste that drips into the back of your throat. Seriously? If it doesn’t give me an embolism or make it difficult to breathe, who cares? I felt the same way about loss of libido. Oh, boohoo, you don’t feel like having sex as much as you used to? I’m taking this drug to help with extreme pain (that has put me in the ER before) and I’m looking for the likelihood of life-threatening allergic reactions (that have put me in the ER before)… Or, I’m taking this drug to try not to succumb to an illness that is ruining my life ~ I just want to be able to get out of bed, do you think I care if I have no libido? Libido ran away with my make-up and high heels long ago.

But, what they don’t tell you is, libido is much more than sex drive. And you don’t know you’ve lost it until it comes back. Or, at least, if you’re battling a chronic illness, libido leaving is masked by everything else leaving, too. I haven’t researched this and maybe I should, but what I’ve experienced the last few months is fascinating. I went off the birth control pill and it was as if someone flicked a switch in my brain. There was something new, which mostly showed up in my dreams, but left a little thread of energy throughout the day, too. It was definitely sexually charged, but, more importantly, it was… vibrantly charged. I’m struggling to put this into words. Something inside me changed so abruptly that there is no doubt in my mind it was from going off the pill. It was primal… but not necessarily lustful. It was vital. It was a desire to feel desire and feel desirable. Not necessarily sexual desire, but a sort of deep, inborn yearning to be needed and wanted, to be likeable. And vice versa: a hunger to need, to want, to like… It was the drive to socialise, to interact, to have intimacy. But, not necessarily sexual intimacy ~ human intimacy. I woke up the other day, still lying in the residue of a dream in which I had been talking, laughing and flirting in some bar with some group of people. I lay there with my eyes closed, relishing that feeling: the joy, confidence, energy… the urgency and excitement of conversations with smart, funny people that you don’t want to end. I felt totally enlivened ~ a memory of my younger, fearless, drinking days that were filled with long, late-night sessions, interesting people, eye contact… when I wasn’t watching the clock, wondering when I could go home. Or, worse, like now when, even if I could go somewhere social ~ even if my energy would surge for one night and allow me to leave my home and enjoy noise, lights and human interaction ~ I wouldn’t want to be seen. I wouldn’t want anyone to see my grey pallor and sunken eyes and lackluster hair that I cut lopsidedly a few months ago when it was getting in the way of my cpap mask.

If I were still healthy or young or a drinker or even still had a job that allowed me to socialise, this might not have blindsided me with its strength and shaken me with its importance. I woke up from those dreams thinking, THIS is what we live for. THIS is why I have to get better. I will have that feeling again, dammit! I am not meant to be housebound, silent, still and scared. It’s not in my DNA. I want to feel attractive and full of life. I am hardwired to be social. My idea of heaven is talking, singing, eating and laughing with those I love.. or interesting strangers. I need to get back there.

When you are sick, sex is the last thing on your mind… But a warning to those of you who are just going through the motions and are fighting each day to find some sort of quality of life: loss of libido may actually mean loss of drive… desire… loss of fire and electricity… You may just need that low vibration to remind you why you are fighting.

Addendum: Well, well, well, in addition to sexual desire, the dictionary says libido is: “The psychic and emotional energy associated with instinctual biological drives. All of the instinctual energies and desires that are derived from the id.” And id is defined as: “the part of the psyche, residing in the unconscious, that is the source of instinctive impulses that seek satisfaction in accordance with the pleasure principle.” Freud was one smart dude. I wonder if he took the birth control pill continuously for nine months, too.